Life Love Mom

Category: Self Care

  • When Your Worst Fears Are Realized

    When Your Worst Fears Are Realized

    This post comes with a trigger warning. I am about to discuss when a child gets sick – every parent’s worst fear. I wish what I was writing was fiction, but it is our reality.

    The fall after my daughter turned two, she developed a crazy high fever. I remember she was hot and flushed, and we weren’t sure why. We couldn’t figure out what it was, and doctors threw out guesses like a virus, fifth’s disease and strep throat. She had countless tests that week and two walk-in visits. Tylenol and Advil weren’t helping but we kept at it for a few days. We waited and monitored and prayed that the fever would break. A few days in, she developed a rash on her hands and feet. Since her fever was so high, we thought it might have been a fever rash. I have a very distinct memory of sitting by the bath, looking at her feet, and being completely bewildered by it. By Friday, 5 days in, things hadn’t changed so we went back to the walk-in. By that point, her eyes had started getting very red. The doctor took one look at her and told us he was sending us to the emergency room. He said that he suspected Kawasaki disease but it needed to be confirmed by the hospital. At that time we were familiar with the disease because Hubby’s nephew experienced it a few years earlier (and made a full recovery), but we were still awestruck and shaking.

    The next week and a half were a whirlwind that I will never forget. We started at one hospital closer to our house, but quickly made the decision to drive downtown to Sick Kids Hospital. The drive down was a mix of panic and fear. I remember that it was dark outside and my first thought was that she was supposed to be in bed by then. When we go to the ER, she was almost immediately diagnosed with Kawasaki’s Disease – a very rare inflammation of the small blood vessels, characterized by a very high fever, and red palms, feet, tongue and eyes. The danger with the disease is that the vessels around the heart also become inflamed, which could lead to coronary failure, and if not treated immediately would be fatal. It must be treated in the first week to reduce these symptoms. Let me tell you – Dr. Google is NOT your friend in these times. While we were waiting to be admitted, we did our own research and read all about the countless children who were left untreated and died from coronary failure. This only fueled the anxiety and panic.

    Early in the morning on day 6, she began the treatment. The typical treatment is an infusion of IVIG (intravenous immunoglobulin) to help her body fight the infection. The typical course of treatment is half a day of infusion, followed by 24 hours fever-free. Unfortunately, she developed an allergic reaction to the infusion with her fever spiking, so they had to stop it less than an hour in. The secondary course was a synthetic IVIG alternative that works the same way but requires more than double the time to administer. We waited, patiently while she received the dose and prayed. Once it was administered, the clock began for our 24 hours fever-free. All seemed to be going well, until the 20th hour when her fever spiked higher than ever, right smack in the middle of the night. I won’t go into specifics but I will tell you that was the worst night of my 38 years of life. The second round of synthetic IVIG was ordered, and her fever began going down. Then, thankfully, she passed the 24-hour mark without fever. Then she passed her cardiac function tests. After a week in hospital, she was released to go home with an Asprin regimen and two very nervous parents.

    After her follow-up a year later, she was released from the hospital’s caseload and we finally felt like we could breathe again. We thank God every day that she does not have any lasting heart defects, as many children do. So many children die or suffer life-long issues as a result of this disease. We are forever grateful that neither of these is the case. Having a hospital like this in our backyard, especially one that has a dedicated Kawasaki’s clinic, was the greatest gift. I tell you all of this, so you can understand why Sick Kids Hospital means so much to me. So when I tell people that they saved her life, I am not being dramatic – it is the truth.

    As a teacher, working with Heart and Stroke on their Jump Rope for Heart campaign is incredibly important to me (hence the picture from a couple of years ago pre-Covid). But more than that, I do whatever I can to help Sick Kids Hospital, and encourage my kids to do the same. Toys, money, or gifts for the nurses in the cardiac ward – any way we can show our appreciation even seven years later. Because, for me, those seven years still feel like yesterday. In a blink of an eye, we are back there, holding her hand, crying together, and praying.

    This month I am participating in the Get Loud campaign for Sick Kids. They are looking to build a bigger hospital, to be able to help even more families. All September long, I am cycling, walking and lifting in honour of this campaign. If this post has struck a chord with you, I urge you to consider helping my campaign. Sick Kids Hospital is the ONLY organization I would ever ask for donations for.

    The donation link is here https://bndfr.com/QvYqY

    And in the meantime, I will continue to be thankful for the gift that we have received – the gift of life for our family and J. I pray that others in our situation have the same outcome. Hug your babies, everyone.

    This is life. Love, Mom.

  • My Peloton And I: A Love Story

    My Peloton And I: A Love Story

    Pandemic life has been hard on everyone. It doesn’t matter if you are single, in a relationship, a parent, working from home, working remotely, or unemployed. We have all had our own journeys to go through. This pandemic will be taught in school for years to come – that our kids will talk about with their kids. For many, this has been one of the hardest seasons to get through, for a variety of reasons. Access to daily necessities have been increasingly difficult (umm hello toilet-paper-gate 2021??) and life as we know it, has changed. We will all be masked for the near future, and stock for Purell will continue to rise. Exercise and access to physical fitness were one of the areas of our lives that took a hit. Depending on your mindset and mental state, this could have been either a positive or negative change.

    This love story began in February 2021 when our bike came. Actually… it started earlier when Hubby suggested a Peloton and I scoffed at how expensive it was. He talked about this bike that he had heard of – that there were on-demand rides and you could spin with other people. I loved the idea but couldn’t understand why it was necessary. At the time, I had been the equivalent of a couch-hermit, not participating in very much activity. Prior to Covid, I was doing kickboxing workouts 4-5 times a week and was in the best shape I had been in years. I felt good both physically and mentally. But then, we went into viral lockdown and everything diminished for me. So, the idea that we could park something in our basement and access workouts on demand was definitely appealing, but daunting.

    A simple Google search will tell you that this all makes sense. You can read article after article that explains the positive correlation between exercise and positive mental health. Experts all agree that movement is paramount to improving mental outlook. It reduces stress, improves cortisol, creates endorphins, and lowers blood pressure. However, it is NOT magic. It is not a switch that you can easily flip and rainbows will form overhead. For those who struggle to get out of dark places, it is hard to get going. I remember having numerous conversations with both Hubby and my mother about feeling stuck in a cycle. I felt so tired, and I knew that if I incorporated exercise I would feel better, but I felt too exhausted to even start. My brain and my body were not in sync. Even though I knew what might help me, I couldn’t bring myself to do it. I feel so fortunate for my amazing support network, who listened, and encouraged, and helped me dig myself out.

    I started my first ride a few days after the bike was delivered. I had no idea what I was getting myself into. I did a 20-minute Tabata ride without a true understanding of what that actually meant, and quite literally felt like I had died. I couldn’t make it up the stairs and Hubby couldn’t understand why I started that way (in hindsight I have no idea either!). But I decided to go back the next day, and the day after that. I hadn’t realized initially that Peloton was not just spinning. I love that I have access to other classes, too. When I started feeling very sore, I began adding yoga routines in the evening. It’s even gotten so that I can’t fall asleep properly if I haven’t done even a small yoga class.

    What I didn’t understand then, that I do now, is there is no price tag too expensive for your mental health. feel so much stronger both mentally and physically after 6 months. It’s a change in mindset and an embracing of my positive energy. It’s putting myself first for 20-30 mins a day and ensuring the endorphins carry me through. I love that my children can watch me on the bike (with headphones for those explicit classes, ha!) and see the importance of moving your body. When I was set to hit 100 rides, they were so excited, and it was so amazing to see. More so than the signs they made or the fact that they were cheering me on, was the fact that they were able to see that this milestone was a big deal. I want to be able to instill those healthy habits in them.

    So now I am working towards my next 100 rides, my next 100 strength classes, and my next 100 yoga classes. It won’t happen overnight but I am confident that I am going to keep at this. It isn’t just for myself anymore. I want to show my kids that not giving up working towards a goal and putting yourself first all make you stronger. It makes me a better mother, a better wife, and a more sane human. Cheers to the next 100!

    This is life. Love, Mom.

    A small disclaimer: I do want to take a moment to say that I am well aware of the privilege that goes along with this post. I know that machines like this are not accessible for everyone. I feel so very fortunate to be able to not only write about this but access it daily. I want to add that there are many machines and apps that are less of a financial commitment and can be game-changers. This is what worked for me, and I am so happy to share that it has.